Our family found these stem cell transplant guides very helpful when our sister underwent a successful syngeneic stem cell transplant for Hodgkin's Lymphoma in 2006. We would like to recommend these guides to those about to go through either a stem cell transplant or bone marrow transplant. The purpose of the guide is to prepare patients, caregivers and families for a transplant by aligning their expectations with actual transplant experiences. Click on links below to view brought to you by The Bone Marrow Transplant Link Website:
Survivor's Guide for Bone Marrow/Stem Cell Transplant
This booklet offers useful suggestions for getting through the difficult days from people who have been there. More importantly, it lets you know that you are not alone, that it is worth the struggle, and that your role is critically important and appreciated.
Caregiver's Guide for SCT/BMT A spotlight now shines on the significant role of the BMT caregiver. This book offers practical suggestions for getting through the difficult days from people who have been there. More importantly, it lets you know that you are not alone, that it is worth the struggle and that your role is critically important and appreciated.
Resource Guide for Stem Cell Transplants - Friends Helping Friends"This easy-to-read reference booklet offers a wide range of topics, providing an overview of the transplant process. Highlighted are financial and insurance concerns, physical and practical issues. More than 60,000 patients, families and health professionals have benefited from this remarkable booklet.
Video: The New NormalLife After Bone Marrow/Stem Cell Transplant
A remarkable 45-minute film for anyone whose life has been touched by bone marrow/stem cell transplant. The New Normal is an incredible story told through the voices of transplant survivors and their caregivers. Although no film can fully prepare an individual for what they will face during a bone marrow/stem cell transplant, The New Normal provides information, inspiration and hope.
Finally from The Center for International Blood & Marrow Transplant Research Website, A Guide to Protecting Your Health after your stem cell transplant: Recommended Tests and Procedures provides guidelines that patients and their physicians can use to schedule long-term follow-up care after a marrow, peripheral blood stem cell (PBSC) or cord blood transplant.
The post SCT / BMT guide includes:
Patient Booklet- Information about side effects that may occur months or years after transplant
- Charts with recommended tests and procedures for patients' six-month, twelve-month and yearly post-transplant check-ups
- Space for patients to record important information about their own post-transplant care
- Autologous Post-Transplant Patients' Guide (PDF) (for patients transplanted with their own marrow or blood stem cells)
- Allogeneic Post-Transplant Patients' Guide (PDF) (for patients transplanted with bone marrow or blood stem cells from a donor)
Physicians' Guidelines
- A checklist of recommended screening and preventive practices to help physicians care for their patients post transplant
Physicians' Guidelines for Post-Transplant Care (PDF)
Best,
Elisa
The Hodgkin's Lymphoma Awareness Shop
www.thehodgeshop.com
The Lymphoma Awareness Shop
www.thelymphomashop.com
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