The Hodgkin's Lymphoma Awareness Shop Blog

Tips for Relapsers - From a Two-Time Hodgkin's Lymphoma Survivor

2010-06-21T14:00:00.000-07:00

When I first fought Hodgkin's Lymphoma (aka Hodgkin's Disease) five years ago, everything happened so quickly. Before I knew it, I was receiving chemo and then it was six months later and I had completed the treatment. Three short months after my remission declaration, I relapsed to what many deem to be the easy cancer. I understood Hodgkin's Lymphoma to have such a high cure rate, but I fell into the group of relapsed and refractory Hodgkin's Lymphoma. Many are unaware that in some cases Hodgkin's Lymphoma can be a challenge to treat and cure.

A couple of years ago, I wrote some tips/suggestions for an acquaintance of mine who relapsed from Hodgkin's Lymphoma. It was suggested that I share these tips on my blog in hopes that they may help someone else. Mind you, I am not a medical practitioner, but because of my real-world experience as a cancer patient and cancer survivor, I am sharing these tips with my readers.

Tips/Suggestions:

1. Consult a top medical team at a cancer center so that you can take advantage of their full services. It's important that you have all the medical resources all in one place (oncologist, radiologist, nutritionist, sociologist, psychologist, therapist, support groups, etc.) so that you are more apt to use them. If you feel you need to change oncologist and get second and third opinions, don't fret ....do it. If this is a relapse, I suggest you also see a therapist for support. They can guide you and provide you with emotional support and advice. (How To Find a Good Doctor If You Have Cancer)

2. My main thing is stress - Minimize it. Stress is a big factor in aggravating certain diseases. Think about what your life was prior to the relapse. Is there something you can change that causes you stress? Is there a toxic person in your life making things worse for you? When you're ill, you need to surround yourself with those who are supporting you and putting your health first. Think about this one and make changes accordingly because as serious as cancer is, a relapse is even more serious. When you are stressed, you lower your immune system which make you susceptible to illnesses, so try to let go of emotional baggage and negative thoughts as much as you can. Consult a therapist, a trusted friend, pastor, group, etc. for support. (How to Manage Stress)

3. I suggest you find books or CDs on positive thinking, guided visualization, mediation, yoga, exercise, health, nutrition, emotional health, etc. Oncologists know how to kill the cancer, but they don't always know how to treat the human behind the cancer. Arm yourself with all the knowledge you can, not just cancer knowledge but overall health, body and mind knowledge and play an active role in your treatment and recovery by doing your research and doing what you can from your end to beat cancer. You need to muster up all the strength and will to fight cancer. This is something doctors cannot do for you. It's up to you. You need to draw deep from inside and find your inner strength through guided visualization and positive affirmations. Don't give up on yourself and don't leave it all up to your doctor. Find that will!

Below are some books I personally recommend:

* Love, Medicine & Miracles by Bernie S. Siegel

* Getting Well Again by O. Carl Simonton, M.D.

* Heal Your Body by Louise L. Hay

* Fighting Cancer From Within by Martin L. Rossman, M.D.

* Guided Imagery for Self-Healing by Martin L. Rossman, M.D.

* What to Eat if You Have Cancer by Daniella Chace

4. Have a pro-active, action-oriented caring family member or trustworthy friend go to every appointment of yours and any hospital stay you may have. Don't do this alone. When you are weak and vulnerable, you need someone to be your advocate to take care of you and ensure you are getting the right treatment, to ask questions when you cannot and take notes.

5. Keeping hydrated is so important - drink you water! In addition, eating right, exercising and resting is also important, especially when you're fighting the cancer battle. If you're on a junk food or sugar diet, consider seeing a nutritionist with your doctor's approval. Ask a nutritionist or physical therapist for support and advice -- ensure your doctor knows that you are on an exercise/diet program. (Read About Diet During Cancer)

6. Slow down a bit whether it is work or other responsibilities that wear you down and seek help from supportive friends or a caring cancer support group. Don't let anyone pressure you to return to your normal life because the "old" normal does not exist. You need to find a new normal way of life consisting of putting your needs first. If you can take time off from work, do it. Some cancer patients can work part time and others prefer time off. Make a choice that is best for you. (Find Cancer Support Groups)

7. I strongly recommend online grocery shopping. Every week, they deliver all my groceries and bottled water. Rather than ask a family or friend to do your shopping for you and wait until they can fit it into their schedule, save your sanity and consider online grocery shopping. Delivery is less than $10.00 and they bring the groceries to your kitchen.

In short, this is the time for YOU to work on getting well and very importantly, stay positive, but also allow yourself to cry when you need to. Take it one day at a time, remember you come first. Gather strength from all those who love you, but also remember love yourself, first and foremost. A relapse is very serious and you need to arm yourself with support, a great medical team and lots of strength. I am now in remission and in spite of fighting two battles with Hodgkin's Lymphoma, I feel strong and positive. I put myself first and made major changes in my lifestyle. It's still not easy, but you learn to make adjustments and find a "new" normal way of life.

~Ann
Hope & Dreams Cancer Awareness Shop

Disclaimer: I'm not a medical doctor. These tips are offered by a two-time cancer survivor. For medical advice, please consult your medical practitioner.

From Our Sister Blog: Raising Hodgkin's Lymphoma Awareness Because It Matters

2010-06-21T11:16:00.000-07:00

For over two years, we as a family, witnessed what our sister endured battling an advanced form of Hodgkin’s Lymphoma (aka Hodgkin’s Disease). The unexpected journey started in the spring of 2005 when our sister was diagnosed with this rare but deemed curable cancer during a routine check-up for flu-like symptoms. After our sister’s diagnosis, many in the medical field as well as cancer patients commented that Hodgkin’s Lymphoma was the “good” cancer to get if you had to choose a cancer.

Unfortunately, it was not the “good cancer” and the road to remission was a bumpy one to say the least. It took a rare syngeneic stem cell transplant and almost two years of back-to-back high dose chemotherapy treatment and radiation therapy to bring our sister into remission status. As a family, we experienced this two-year challenging journey right along our sister. This sobering experience inspired us to do something tangible in our sister’s honor and in honor of other cancer warriors and survivors to help promote worldwide awareness for Hodgkin’s Lymphoma, a cancer wrongly deemed the “good cancer”.

We launched Hope & Dreams Cancer Awareness T-Shirt Shop in 2006 to raise awareness and support for Hodgkin’s Lymphoma and General Lymphoma/Non-Hodgkin’s Lymphomas. The store first opened with an assortment of Lymphoma awareness t-shirt designs (Hodgkin’s and Non-Hodgkin’s) and later expanded to other cancer awareness merchandise.

Today, our sister is in remission and working on recovering from the harsh treatments. We are grateful to God that she has been given a second opportunity to fulfill her hopes and dreams — cancer free. Many have asked how our sister got through two years of back-to-back cancer treatment for aggressive Hodgkin’s Lymphoma, her answer is: determination, hope and most of all faith.

Hodgkin's Lymphoma Awareness Month Matters

2009-08-28T15:07:00.000-07:00

September brings national awareness for all Lymphomas, including Hodgkin's Lymphoma aka Hodgkin's Disease, a rare type of Lymphoma originating from a type of white blood cells called lymphocytes. It was named after British pathologist Thomas Hodgkin in 1832.

Hodgkin's Lymphoma is not a well-known cancer as is Breast Cancer. In order to get Hodgkin's Lymphoma noticed, it is important to promote and advocate it. Wearing a violet awareness ribbon is more than wearing an ordinary color. It's a mission, a statement and awareness for an important cause that affects thousands of men, women and children each year. When you wear a violet ribbon inspired design, you help put Hodgkin's Lymphoma in the forefront and you stand up to it by advocating, supporting and fighting for a cure. As a two time survivor of Hodgkin's Lymphoma, I personally know Hodgkin's Lymphoma awareness matters.

On that note, I am proud to announce our collection of violet ribbon inspired t-shirts and gifts to commemorate the importance of raising awareness for this rare cancer brought to you by our shops HopeDreamsDesigns.Com and our sister shop CancerApparelGifts.Com. Both shops have an extensive collection of Hodgkin's Lymphoma merchandise and we proudly donate to Lymphoma research.

Check out our collection below and don't forget to bookmark us both at HopeDreamsDesigns.Com and our sister shop CancerApparelGifts.Com

Note: We also have an extensive lime green ribbon collection to commemorate Non-Hodgkin's and General Lymphoma at. Lymphoma Awareness Month (Lime Green Ribbon)

Hodgkin's Lymphoma Survivor Years T-Shirts & Gifts

2008-08-27T20:26:00.000-07:00

Celebrate survivorship and remission from Hodgkin's Lymphoma aka Hodgkin's Disease with our line of Hodgkin's Lymphoma Survivor t-shirts, apparel & gifts with violet ribbon or violet ribbon inspired designs. View designs below or visit our shop Hope & Dreams Cancer Awareness T-Shirt Shop.

Support Lymphoma Awareness Month with "I Wear Lime Green Ribbon" T-Shirts

2008-08-22T11:03:00.000-07:00

September is National Lymphoma Awareness Month! Wear your support for lymphoma awareness with our latest "I Wear Lime Green Ribbon" in cool black t-shirts in support of those you know battling lymphoma (Hodgkin's or Non-Hodgkin's Lymphoma) and to promote awareness brought to you by Hope & Dreams Cancer Awareness T-Shirt Shop. We also have other versions of "I Wear Lime Green Ribbon" t-shirts (click here). Click on design below to view each lymphoma t-shirt design or visit our main store at www.hopedreamsdesigns.com

New Hodgkin's Lymphoma Awareness Shirts and Gifts

2008-03-28T06:30:00.000-07:00

Support Hodgkin's Lymphoma Awareness with our unique Hodgkin's Lymphoma Awareness shirts, apparel and gifts brought to you by our main shop Hope & Dreams Cancer Awareness T-Shirt Shop. Refer your friends to our shop and bookmark us. A portion of all proceeds benefit Hodgkin's Lymphoma Research. Click on image designs to view.

I Wear Violet For Hodgkin's Lymphoma
I Wear Violet Ribbon t-shirts, gifts and apparel for someone you know battling and surviving Hodgkin's Lymphoma with violet ribbon to raise awareness for Hodgkin's Lymphoma

Support a Hodgkin's Cure, Violet is Not My Color
Support a Cure for Hodgkin's Lymphoma Violet is Not My Color t-shirts, apparel and unique cancer gifts to raise awareness for Hodgkin's Lymphoma

Finding a Cure For Hodgkin's Lymphoma Priceless
Finding a Cure For Hodgkin's Lymphoma Priceless t-shirts, apparel and gifts to raise awareness for this rare cancer known as Hodgkin's Lymphoma. Perfect for cancer awareness events.

Think Violet For Hodgkin's Lymphoma Shirts & Gifts
Think Violet for Hodgkin's Lymphoma Awareness, Hope and a Cure shirts and gifts to raise awareness for Hodgkin's Lymphoma. Ideal to wear at cancer events or anytime.

Hodgkin's Lymphoma Awareness Shirts & Gifts
Hodgkin's Lymphoma Awareness shirts, tees and unique gifts with violet ribbon to symbolize support and awareness for Hodgkin's Lymphoma

Hodgkin's Lymphoma Awareness
Hodgkin's Lymphoma Awareness Show Your Support to the Violet Ribbon shirts, tees & gifts to raise awareness for this rare cancer

Hodgkin's Awareness
Hodgkin's Lymphoma Awareness shirts and gifts with violet ribbon to raise awareness for Hodgkin's Lymphoma. Ideal as gifts or to wear at cancer awareness events

Hodgkin's Lymphoma Violet Ribbon Shirts & Gifts
Hodgkin's Lymphoma tees, shirts and gifts with a violet ribbon to symbolize and raise awareness for Hodgkin's Lymphoma

Hodgkin's Lymphoma Awareness Shirts & Gifts
Hodgkin's Lymphoma Violet Ribbon Awareness shirts, apparel and unique gifts for the Hodgkin's Lymphoma warrior, survivor and supporter

Go Violet Hodgkin's Awareness Shirts & Gifts
Go Violet slogan shirts and gifts to raise awareness for Hodgkin's Lymphoma and to support the violet ribbon campaign. Ideal for cancer events.

I Wear Ribbons For Hodgkin's Lymphoma
I Wear Ribbons for Hodgkin's Lymphoma t-shirts, apparel & buttons with both lime green and violet ribbons to represent Hodgkin's Lymphoma as requested by our customers.

I Wear Ribbons For Hodgkin's Lymphoma
I Wear Ribbons for Hodgkin's Lymphoma t-shirts, apparel & buttons (version 1) with both lime green and violet ribbons to represent Hodgkin's Lymphoma as requested by our customers.

Hodgkin's Lymphoma T-Shirts and Gifts To Raise Awareness

2008-03-25T20:05:00.000-07:00

Looking for Hodgkin's Lymphoma shirts and gifts to help raise awareness for this rare cancer? Do you have a special cancer awareness event to attend to and need a customized design? Visit The Hodgkin's Lymphoma Violet Awareness Shop for shirts, apparel and gifts to support Hodgkin's Disease awareness or you can visit our main store at Hope & Dreams Cancer Awareness Shop where you'll find an variety of cancer awareness shirts and gifts for Lymphoma, Breast Cancer, Leukemia, Lung Cancer awareness and more. We range from awareness slogans to funny bold designs. We can customize and provide bulk request quotes. Click on images below to view our latest Hodgkin's Disease Awareness T-Shirts:

Hodgkin's Lymphoma Awareness Shirts & Gifts
Grunge style "Hodgkin's Lymphoma Awareness" shirts, apparel & gifts with violet ribbon to raise awareness & support for Hodgkin's Lymphoma.

Hodgkin's Lymphoma Awareness
Hodgkin's Lymphoma Awareness Violet Ribbon with white flower to raise awareness and support for Hodgkin's Lymphoma aka Hodgkin's Disease. Ideal for Lymphoma Awareness Month in September or anytime.

Hodgkin's Lymphoma Awareness T-Shirts & Gifts
Raise Awareness and Support for Hodgkin's Lymphoma with our Grunge style "Hodgkin's Lymphoma Awareness" shirts, apparel & gifts with lime green ribbon.

I Wear Violet Ribbon Hodgkin's T-Shirts & Gifts (V
I Wear Violet Ribbon t-shirts, gifts and apparel for someone you know battling and surviving Hodgkin's Lymphoma with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet Ribbon Hodgkin's Shirts & Gifts
I Wear Violet Ribbon Hodgkin's Lymphoma Shirts & Apparel to raise support and awareness for someone you know battling, surviving and winning the battle against Hodgkin's Lymphoma.

I Wear Violet Ribbon Hodgkin's Shirts & Gifts (V2)
I Wear Violet Ribbon t-shirts, apparel & awareness gifts in honor of someone you know fighting, surviving & winning their battle with Hodgkin's Lymphoma and to raise awareness

I Wear Violet Ribbon Shirts & Gifts (V1)
I Wear Violet Ribbon shirts & apparel for in honor of a loved one fighting, surviving & winning the battle against Hodgkin's Lymphoma. Raise and support awareness for Hodgkin's Lymphoma.

Cure Hodgkin's Lymphoma T-Shirts & Gifts
Cure Hodgkin's Lymphoma T-Shirts, apparel and gifts with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for lymphoma awareness month, etc.

Fight Hodgkin's Lymphoma T-Shirts & Gifts
Fight Hodgkin's Lymphoma T-Shirts & Gifts to raise awareness and support for Hodgkin's Lymphoma, a rare cancer of the lymphatic system. Ideal for lymphoma awareness month or anytime.

Beat Hodgkin's Lymphoma T-Shirts & Gifts
Beat Hodgkin's Lymphoma T-Shirts & Gifts to raise awareness and support for Hodgkin's Lymphoma, a rare cancer of the lymphatic system. Ideal for lymphoma awareness month, etc.

Gone Violet Hodgkin's Lymphoma T-Shirts & Gifts
Gone Violet T-Shirts, apparel and gifts to raise awareness and support for Hodgkin's Lymphoma. Ideal for lymphoma awareness month or anytime

I Wear Ribbons For Hodgkin's
I Wear Ribbons for Hodgkin's Lymphoma t-shirts, apparel & buttons with both lime green and violet ribbons to represent Hodgkin's Lymphoma as requested by our customers.

I Wear Ribbons For Hodgkin's Lymphoma T-Shirts
I Wear Violet & Lime Ribbons for Hodgkin's Lymphoma Awareness t-shirts, apparel & buttons to raise awareness and support for Hodgkin's Lymphoma aka Hodgkin's Disease.

Think Violet (Hodgkin's Lymphoma)
Think Violet shirts, apparel and gifts with Hope, Courage & Strength affirmations to raise awareness and support for Hodgkin's Lymphoma.

Think Violet (Hodgkin's Lymphoma)
Think Violet shirts, apparel and gifts with Hope, Awareness and Cure affirmations to raise awareness and support for Hodgkin's Lymphoma.

Cure Hodgkin's Lymphoma
Cure Hodgkin's Lymphoma t-shirts, & gifts to raise awareness for Hodgkin's Lymphoma in violet color to bring attention to this rare cancer

Go Violet Hodgkin's Awareness Shirts & Gifts
Go Violet slogan shirts and gifts to raise awareness for Hodgkin's Lymphoma and to support the violet ribbon campaign. Ideal for cancer events.

Think Violet-Hodgkin's Disease Awareness
Think Violet design to represent Hodgkin's Lymphoma Awareness and unique cancer gifts. Wear or display "Think Violet" to spread awareness for Hodgkin's Disease

Think Violet Hodgkin's Lymphoma Awareness Apparel
Raise awareness for Hodgkin's Lymphoma with our "Think Violet" shirts, apparel, tees and gifts with small violet ribbon to symbolize awareness and support by Hope & Dreams Cancer Awareness Shop.

I Fight With An Attitude To Win Hodgkin's T-Shirts
Hodgkin's Lymphoma t-shirts, apparel & gifts with the warrior slogan "I Fight With An Attitude to Win" to empower & inspire & to raise awareness & support for Hodgkin's Lymphoma aka Hodgkin's Disease.

Kicking Hodgkin's Ass PRICELESS T-Shirts & Gifts
Kicking Hodgkin's Lymphoma's Ass PRICELESS t-shirts, apparel and gifts to let everyone know you did just that and to raise awareness and support for Hodgkin's Lymphoma aka Hodgkin's Disease

Hodgkin's Lymphoma Survivor T-Shirts & Gifts
Grunge style Hodgkin's Lymphoma Survivor shirts, apparel & gifts with lime green ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma events, etc.

Hodgkin's Lymphoma Survivor T-Shirts & Gifts
Hodgkin's Lymphoma Survivor T-Shirts, apparel & gifts to wear proudly and to raise awareness and support for Hodgkin's Lymphoma.

Mission Remission Hodgkin's Lymphoma T-Shirts
Mission: Achieve Remission Hodgkin's Lymphoma t-shirts & gifts to raise awareness and support for Hodgkin's Lymphoma and to serve as a reminder to the Warrior's of their mission to achieve remission.

Hodgkin's Lymphoma Survivor Shirts & Apparel
Grunge style Hodgkin's Lymphoma Survivor shirts, apparel & gifts with violet ribbon to raise awareness & support for Hodgkin's Lymphoma.

Hodgkin's Lymphoma Survivor T-Shirts & Gifts
Hodgkin's Lymphoma Survivor shirts, apparel & gifts with lime green ribbon & feminine white flower. Perfect to raise support and awareness for Hodgkin's Lymphoma, etc.

Fuck Hodgkin's Lymphoma T-Shirts & Gifts
Fuck Hodgkin's Lymphoma shirts & apparel. Say what you mean. No puck, no duck, but FUCK Hodgkin's Lymphoma to show your defiance and raise awareness in a bold way for Hodgkin's Lymphoma.

Remission Rocks Hodgkin's Disease T-Shirts & Gift
Remission Rocks Hodgkin's Lymphoma shirts, apparel and gifts in violet for the Hodgkin's Lymphoma Survivor to celebrate their remission and to raise awareness and support for this rare cancer.

You Don't Scare Me, I'm a Hodgkin's Survivor
Wear these "You Don't Scare Me, I'm a Hodgkin's Lymphoma Survivor" T-shirts with pride and a sense of humor!

Hodgkin's Lymphoma Remission T-Shirts & Gifts
I Made Club Remission with violet ribbon shirts and gifts to symbolize remission from Hodgkin's Lymphoma. Time to celebrate!

Hodgkin's Disease Chemo Graduate T-Shirts & Gifts
I'm a Chemo Grad T-shirts with violet color symbolizing Hodgkin's Disease to wear when you graduate from chemo!

Remission Rocks Hodgkin's Disease T-Shirts & Gifts
Grunge Style Remission Rocks Hodgkin's Lymphoma shirts, apparel & gifts in violet for the Hodgkin's Lymphoma Survivor to celebrate their remission

Chemo Graduation Day Hodgkin's Disease T-Shirts
Chemo Graduation Day T-Shirts and unique gifts for Hodgkin's Disease Survivors celebrating their last day of chemo!

Hodgkin's Lymphoma Club Remission T-Shirts & Gi

Survivor and Warrior Shirts For Hodgkin's Lymphoma Awareness

2008-02-11T15:19:00.000-08:00

Survivor and Warrior shirts with violet ribbon or violet color symbolizing Hodgkin's Lymphoma Awareness brought to you by The Hodgkin's Lymphoma Awareness Shop. Click on images below to view. Proceeds to benefit Lymphoma research. Visit our main store: Hope & Dreams Cancer Awareness Shop at www.hopedreamsdesigns.com

You Don't Scare Me, I'm a Hodgkin's Survivor Wear these "You Don't Scare Me, I'm a Hodgkin's Lymphoma Survivor" T-shirts with pride and a sense of humor!	Cancer is SO Yesterday Wear these cancer survivor t-shirts with a sense of humor and to let everyone know you're in remission. Violet Ribbon represents Hodgkin's Disease Awareness.	Cancer Can KISS my ASS Cancer Can KISS my ASS t-shirt, apparel and unique cancer gifts to tell cancer what it can do. Be defiant and wear or display this bold design (CCKMA)
Hodgkin's Lymphoma Survivor Hodgkin's Lymphoma Survivor t-shirts, apparel and cancer gifts for survivors	Hodgkin's Lymphoma Survivor Hodgkin's Lymphoma Survivor apparel, mugs, stickers and much more to show your support for the Violet Ribbon Campaign to bring awareness to Hodgkin's Disease	Hodgkin's Lymphoma Survivor Hodgkin's Lymphoma Survivor T-Shirts and unique cancer gifts to wear or display proudly
Violet Ribbon-Hodgkin's Survivor Hodgkin's Lymphoma Survivor t-shirts, apparel and gifts	You're Looking at a Survivor w/violet ribbon You're looking at a SURVIVOR with violet ribbon to represent Hodgkin's Disease	Warrior-Hodgkin's Lymphoma Warrior-Hodgkin's Lymphoma with Violet Ribbon t-shirts and cancer gifts for the warriors fighting Hodgkin's Disease
I'm a Cancer Warrior I'm a Cancer Warrior T-shirt, stickers, buttons and unique cancer gifts to spread Hodgkin's Disease awareness	Hodgkin's Lymphoma Warrior Warrior-Hodgkin's Lymphoma with Violet Ribbon t-shirts and cancer gifts for the warriors fighting Hodgkin's Disease	Hodgkin's Lymphoma Warrior Hodgkin's Lymphoma Warrior T-Shirts and unique cancer gifts to wear or display

Hodgkin's Lymphoma Awareness

2008-02-01T11:37:00.000-08:00

When our sister was diagnosed with stage IV-B Hodgkin's Lymphoma in mid-2005, we knew that in addition to supporting our sister,we had to do our part to bring awareness to this rare cancer after she recovered. Last year, we launched "The Hodgkin's Lymphoma Violet Awareness T-Shirt Shop" in addition to "The Lymphoma Lime Green Awareness T-Shirt Shop" to bring attention to both Hodgkin's Lymphoma and all Lymphomas. Our efforts and the proceeds of our awareness merchandise have benefited Lymphoma Research and various programs sponsored by the Leukemia & Lymphoma Society. We are happy to be able to do our small part to benefit Lymphoma research towards a cure.

Almost three years after our sister's diagnosis and 20 months after her syngeneic stem cell transplant, she continues to be in remission and the likelihood that she is cured from Hodgkin's Disease increases as the years go by. Unfortunately, a small minority don't always reach remission yet alone a cure, so at this one-year anniversary of our Hodgkin's Lymphoma awareness shops, we dedicate our efforts to all Lymphoma survivors, their families, caregivers, friends and especially to those who are no longer with us. We do this for you.

Fight strong and never lose hope. God bless.

The Mendes Family

Hospital Tips & Suggestions for Stem Cell Transplant Patients

2008-01-25T06:26:00.000-08:00

For those who are going through a stem cell transplant or a bone marrow transplant, below is a list of tips for long hospital stays and related to help you through long hospital stays:

SCT/Hospital Tips and Suggestions:

Bring a list of drugs you take - for your own records and for the hospital files
Bring a list of medicines you are allergic to (very important)
Keep a list of family and friend's phone numbers
Consider a Healthcare Power of Attorney and Living Will (check legalzoom.com)
Apply for Social Security Benefits prior to your SCT. If rejected, appeal or contact an attorney
Bring a notepad and pen to write notes and names of doctors, nurses, PCAs, etc.
Buy a calling card (most hospitals only allow you to dial within their area code)
Check with your hospital if cell phones are allowed
Bring a laptop -- it's a great to keep in touch and/or watch movies
Bring light reading material like magazines to help pass the time
Bring movies - subscribe to Netflix (this proved very helpful in helping pass the time)
Bring your iPod or a CD player - music is therapy to the soul
Bring games or cards - to help pass the time
Bring hobby/craft stuff - to help pass the time
Bring reminders of home - to keep you going strong (pictures, bible, etc.)
Bring a fluffy pillow and a soft blanket
Definitely bring your own PJs, robe, socks, slippers & sneakers (you may be asked to walk after your SCT)
Pack cotton low v-neck shirts (for easy port or Hickman access)
Pack warm sweats (it gets cold)
Pack sleeping caps or comfortable knit caps & hats
Bring plastic bags to store your laundry so your caregiver can take it home to wash
Bring anti-bacterial wipes (to clean phones, counters, door knobs, etc.)
Bring sugar free candy to lessen the taste of the heparin shots
Go ahead, have your room decorated (it makes for a supportive environment)
Try to keep visitors to a minimum and only essential visitors. Keep anyone with a cold away from you during your stem cell transplant to prevent infections and such
WALK (exercising is very important to the health of your lungs after your stem cell transplant).
Keep your medical team informed when you need pain relievers or when you have any side effects even if you think it's minor. Any side effect during an SCT needs to be mentioned to your medical team so that they can help you. Be a teamplayer!
ALWAYS seek the advice of medical experts and have your caregiver take notes
Allow yourself to get some rest. This is a tough journey and sleep helps
When in doubt, GET A SECOND MEDICAL OPINION.

The Hodgkin's Lymphoma Awareness Shop
http://www.thehodgeshop.com/

The Lymphoma Awareness Shop
http://www.thelymphomashop.com/

Practical Tips For People With Cancer & Their Loved Ones

2008-01-20T06:33:00.000-08:00

We recommend CancerCare Fact Sheets for quick tips and easy reference on a wide range of cancer topics and tips for people with cancer and their loved ones. Visit: http://www.cancercare.org/about_us/fact_sheets.php

TOPICS INCUDE

When You're Diagnosed
Coping with a Cancer Diagnosis
Managing Side Effects
Cancer Types
CancerCare for Kids®
Clinical Trials
Prevention and Early Detection
Coping With Grief and Bereavement
Publicaciones en español
Publications in Russian

http://www.cancercare.org/about_us/fact_sheets.php

I Wear Violet T-Shirts For Hodgkin's Lymphoma Awareness to Show Your Support!

2008-01-19T14:38:00.001-08:00

Wear your support for Hodgkin's Lymphoma Awareness with our "I Wear Violet Ribbon" t-shirts and apparel in honor of someone you know fighting and surviving Hodgkin's Lymphoma. Perfect to wear at support group meetings, cancer awareness events or anywhere you want to emphasize Hodgkin's Lymphoma (aka Hodgkin's Disease) awareness and support. Proceeds to benefit lymphoma research. Click on each design below to view t-shirts or visit our store directly by clicking here.

I Wear Violet Ribbon For My Aunt T-Shirts
I Wear Violet Ribbon For My Aunt t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Best Friend T-Shirts
I Wear Violet Ribbon For My Best Friend t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Brother
I Wear Violet Ribbon For My Brother t-shirts, gifts and apparel with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet For My Brother-in-Law T-Shirts
I Wear Violet Ribbon For My Brother-in-Law t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Cousin T-Shirts
I Wear Violet Ribbon For My Cousin t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Dad T-Shirts
I Wear Violet Ribbon For My Dad t-shirts, gifts and apparel with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet Ribbon For My Daddy T-Shirts
I Wear Violet Ribbon For My Daddy t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Daughter T-Shirts
I Wear Violet Ribbon For My Daughter t-shirts, gifts and apparel with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet Ribbon For My Daughter-in-Law
I Wear Violet Ribbon For My Daughter-in-Law t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Father T-Shirts
I Wear Violet Ribbon For My Father t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Friend T-Shirts
I Wear Violet Ribbon For My Friend t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Grandaughter T-Shirts
I Wear Violet Ribbon For My Granddaughter t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Grandfather T-Shirts
I Wear Violet Ribbon For My Grandfather t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Grandma T-Shirts
I Wear Violet Ribbon For My Grandma t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Grandmother T-Shirts
I Wear Violet Ribbon For My Grandmother t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Grandpa T-Shirts
I Wear Violet Ribbon For My Grandpa t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Grandson T-Shirts
I Wear Violet Ribbon For My Grandson t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Husband T-Shirts
I Wear Violet Ribbon For My Husband t-shirts, gifts and apparel with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet Ribbon For My Mom T-Shirts
I Wear Violet Ribbon For My Mom t-shirts, gifts and apparel with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet Ribbon For My Mommy T-Shirts
I Wear Violet Ribbon For My Mommy t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Mother T-Shirts
I Wear Violet Ribbon For My Mother t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Nephew T-Shirts
I Wear Violet Ribbon For My Nephew t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Niece T-Shirts
I Wear Violet Ribbon For My Niece t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Son T-Shirts
I Wear Violet Ribbon For My Son t-shirts, gifts and apparel with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet Ribbon For My Sister T-Shirts
I Wear Violet Ribbon For My Sister t-shirts, gifts and apparel with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet For My Sister-in-Law
I Wear Violet Ribbon For My Sister-in-Law t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Son-in-Law T-Shirts
I Wear Violet Ribbon For My Son-in-Law t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Uncle T-Shirts
I Wear Violet Ribbon For My Uncle t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For My Wife T-Shirts
I Wear Violet Ribbon For My Wife t-shirts, gifts and apparel with violet ribbon to raise awareness for Hodgkin's Lymphoma

I Wear Violet Ribbon With An Attitude T-Shirts
I Wear Violet Ribbon With an Attitude t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For Awareness T-Shirts
I Wear Violet Ribbon For Awareness t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime

I Wear Violet Ribbon For The Cure T-Shirts
I Wear Violet Ribbon For the Cure t-shirts, gifts and apparel with violet ribbon to raise awareness and support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For Me T-Shirts
I Wear Violet Ribbon For Me t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet For All Survivors T-Shirts
I Wear Violet Ribbon For All Survivors t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

I Wear Violet Ribbon For All Warriors T-Shirts
I Wear Violet Ribbon For All Warriors t-shirts, gifts & apparel with violet ribbon to raise awareness & support for Hodgkin's Lymphoma. Ideal for Lymphoma awareness month or anytime.

*Hodgkin's Lymphoma is a rare cancer of the immune system that is marked by the presence of a type of cell called the Reed-Sternberg cell. Symptoms include the painless enlargement of lymph nodes, spleen, or other immune tissue. Other symptoms include fever, weight loss, fatigue, or night sweats.

Stem Cell Transplant / Bone Marrow Transplant Helpful Guides

2008-01-17T11:17:00.000-08:00

Our family found these stem cell transplant guides very helpful when our sister underwent a successful syngeneic stem cell transplant for Hodgkin's Lymphoma in 2006. We would like to recommend these guides to those about to go through either a stem cell transplant or bone marrow transplant. The purpose of the guide is to prepare patients, caregivers and families for a transplant by aligning their expectations with actual transplant experiences. Click on links below to view brought to you by The Bone Marrow Transplant Link Website:

Survivor's Guide for Bone Marrow/Stem Cell Transplant
This booklet offers useful suggestions for getting through the difficult days from people who have been there. More importantly, it lets you know that you are not alone, that it is worth the struggle, and that your role is critically important and appreciated.

Caregiver's Guide for SCT/BMT
A spotlight now shines on the significant role of the BMT caregiver. This book offers practical suggestions for getting through the difficult days from people who have been there. More importantly, it lets you know that you are not alone, that it is worth the struggle and that your role is critically important and appreciated.

Resource Guide for Stem Cell Transplants - Friends Helping Friends"
This easy-to-read reference booklet offers a wide range of topics, providing an overview of the transplant process. Highlighted are financial and insurance concerns, physical and practical issues. More than 60,000 patients, families and health professionals have benefited from this remarkable booklet.

Video: The New Normal
Life After Bone Marrow/Stem Cell Transplant
A remarkable 45-minute film for anyone whose life has been touched by bone marrow/stem cell transplant. The New Normal is an incredible story told through the voices of transplant survivors and their caregivers. Although no film can fully prepare an individual for what they will face during a bone marrow/stem cell transplant, The New Normal provides information, inspiration and hope.

Finally from The Center for International Blood & Marrow Transplant Research Website, A Guide to Protecting Your Health after your stem cell transplant: Recommended Tests and Procedures provides guidelines that patients and their physicians can use to schedule long-term follow-up care after a marrow, peripheral blood stem cell (PBSC) or cord blood transplant.

The post SCT / BMT guide includes:

Patient Booklet

Information about side effects that may occur months or years after transplant
Charts with recommended tests and procedures for patients' six-month, twelve-month and yearly post-transplant check-ups
Space for patients to record important information about their own post-transplant care

To download, click on links below:

Autologous Post-Transplant Patients' Guide (PDF) (for patients transplanted with their own marrow or blood stem cells)
Allogeneic Post-Transplant Patients' Guide (PDF) (for patients transplanted with bone marrow or blood stem cells from a donor)

Physicians' Guidelines

A checklist of recommended screening and preventive practices to help physicians care for their patients post transplant

To dowload, click on link below

Physicians' Guidelines for Post-Transplant Care (PDF)

Best,

Elisa

The Hodgkin's Lymphoma Awareness Shop
www.thehodgeshop.com

The Lymphoma Awareness Shop
www.thelymphomashop.com

20 Months of Remission From Hodgkin's Lymphoma and Getting Stronger Every Day!

2008-01-13T14:02:00.000-08:00

A quick note to spread some good news to those battling Hodgkin's Lymphoma and to also talk about the latest from our shop. Our sister had her CT scan a couple of days ago and we are proud to say that she is now 20 months in remission from her second battle with Hodgkin's Lymphoma. This is a GREAT start for 2008!

We are happy and proud of our sister's courage, inspiration to many cancer survivors and for kicking cancer's butt! 20 months of remission and getting stronger every day is an absolute gift from God and a sign she is going to continue to do well.

Support A Cure for Hodgkin's Lymphoma w/Violet is Not My Color T-Shirts

2008-01-09T17:50:00.001-08:00

Our newest Hodgkin's Disease Awareness Design is called: "Support a Cure for Hodgkin's Lymphoma with Violet is Not My Color t-shirt design to support lymphoma awareness and a cure. Click on image to view t-shirts and unique cancer gifts. Proceeds to benefit lymphoma research.

Support a Hodgkin's Cure T-Shirts

Support a Cure for Hodgkin's Lymphoma with Violet is Not My Color design on t-shirts, apparel & cancer gifts to wear and show your support for a cure

Wear Your Support for Hodgkin's Disease Awareness

2007-12-29T18:00:00.000-08:00

Wear your support for Hodgkin's Disease Awareness with our Violet Ribbon t-shirts, apparel and unique cancer gifts. Click on either categories below for awareness and support OR Survivor/Warrior. We have a wide variety of Hodgkin's Lymphoma t-shirts, apparel & gifts or visit our main shop directly at www.hopedreamsdesigns.com

Hodgkin's Disease Awareness T-Shirts & Gifts
A variety of Hodgkin's Lymphoma supportive t-shirts, apparel, sweatshirts, tank tops and unique violet ribbon gifts to wear your support for a cure. Great for the whole family

Hodgkin's Lymphoma Survivor T-Shirts & Gifts
A wide variety of Hodgkin's Lymphoma Survivor and Warrior t-shirts, apparel & unique gifts with a little bit of an attiutde!

About Our Hodgkin's Lymphoma T-Shirt Shop

2007-12-19T12:44:00.000-08:00

The Hodgkin's Lymphoma Violet Ribbon Awareness T-Shirt Shop was established in February 2007 by a pair of sisters, one who survived two battles of Hodgkin's Lymphoma and the other who saved her life by donating her stem cells for a life saving syngeneic stem cell transplant to help her sister. Through their partnership with Cafepress, they open their shop to help raise awareness for what is deem a rare and easy cancer known as Hodgkin's Lymphoma (aka Hodgkin's Disease). Through their cancer awareness t-shirts, apparel and merchandise representing Hodgkin's Lymphoma Awareness, they hope to bring attention to this rare and misunderstood cancer. The violet ribbon color was chosen in concurrence with the non-profit organization "curehodgkins" mission and adoption of the Violet Ribbon color in 2001 as the official symbol of unification for Hodgkin's Lymphoma, its patients, survivors and their families. They continue the Violet Ribbon Campaign's mission in honor of all those affected by Hodgkin's Lymphoma. Help bring attention to Hodgkin's Lymphoma by wearing your support for awareness of this rare cancer. Proceeds of the sale of these awareness products benefit lymphoma research. Visit www.thehodgeshop.com to wear your support! As my twin sister says, "it's all about hope!"

Below are images of some of our Hodgkin's Disease Awareness T-Shirts:

Hodgkin's Lymphoma Awareness T-Shirts	I Wear a Violet Ribbon T-Shirts	Hope for Hodgkin's Disease T-Shirts
It's All About Hope T-Shirts (My Sister's Motto!)	Believe - Hodgkin's Lymphoma T-Shirts	Hodgkin's Lymphoma Survivor T-Shirts
Hodgkin's Lymphoma Survivor T-Shirts	I'm a Cancer Warrior T-Shirts	I'm a Chemo Grad T-Shirts
You Don't Scare Me, I'm a Hodgkin's Survivor T-Shirts	Cancer Can KISS my ASS T-Shirts	I Kicked Cancer's Butt T-Shirts

If you're looking for general cancer awareness t-shirts, visit our parent shop at www.hopedreamsdesigns.com